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r/iih

10,890 subscribers
This is a safe, kind community for those living with Idiopathic Intracranial Hypertension (IIH), a rare disease where a person has a high level of intracranial pressure; to learn, connect, share experiences, and find support. Those who are in the process of being diagnosed, have been diagnosed, or have loved ones with IIH are all welcome. Older names that have been used include Pseudotumor Cerebri and Benign Intracranial Hypertension.

Notice: This subreddit is not actively monitored, so the posts here are only a small subset of what exists on reddit.

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Advice recreational drugs In diagnosis process Medication/Treatment Symptoms In diagnose process My Story Remission
New Top (24hr) Top (Week) Top (Month)
to r/iih by Traditional-Row-7361
1 day ago
Off Diamox successfully since September!!
Remission
to r/iih by Similar-Summer4907
1 month ago
Venus sinus stenting
Advice
to r/iih by Patient_Cat1965
3 months ago
I have all the symptoms and diagnosed with flattened pituitary gland
In diagnosis process
to r/iih by Traditional-Row-7361
1 month ago
Loud indoor events
Advice
to r/iih by littleprincessb420
6 months ago
tbh not sure if saving my vision is worth it - shunt surgery scheduled for 6/19
Advice
to r/iih by littleprincessb420
6 months ago
Are the tiktok horror stories true? vp shunt surgery recovery
Advice
to r/iih by BC_81
7 months ago
Question..Is there somewhere I could give to my son's teachers/ school to explain this condition?
Advice
to r/iih by viakhalifa
9 months ago
issue with taking Diamox
Medication/Treatment
to r/iih by engagedbbw
2 months ago
Sulfa Allergy
Medication/Treatment
to r/iih by engagedbbw
2 months ago
What a whirlwind
In diagnosis process
to r/iih by LadyxRadiator
1 year ago
Developed IIH from doxycycline?
Advice
to r/iih by BC_81
7 months ago
Hello parent who is new to all this...
Advice
to r/iih by loosetiles90
1 year ago
Head pressure when lying on stomach and lifting head?
In diagnosis process
to r/iih by miniowlish
8 months ago
Heartbeat in face
Symptoms
to r/iih by Small_Raspberry8788
1 year ago
Marijuana and Diamonds interaction
recreational drugs
to r/iih by 44DaysATW
1 year ago
The Science Behind Weight Loss Helping IIH?
to r/iih by 44DaysATW
1 year ago
Does Anyone Experience Dizziness/Rocking during the day?