My son (10 years old) got diagnosed with this a couple months ago. Still waiting on the write up from the neuropsych evaluation for his pediatric neurologist. The neurologist sent us to the neuropsych because she said she needed those results in addition to the MRI. We originally went to see her due to to memory issues my son has. She sent us for the MRI and got results the showed this. Which was not what she expected to see. He has seen an opthalmologist (he already had one due to his juvenile idiopathic arthritis) who said the fluid buildup there is not bad yet. Which is why he isn't having vision issues. But she is adding it to the regular checks she already had to do. I know the neuropsych doctor wants the neurologist to move quicker and more dramatic. I know we see her in the next few weeks. I know surgery was mentioned as a possibility after a lumbar puncture. I am curious what you all can share that I should know etc. Especially since the neurologist is very much about letting you research yourself and then come back to her. So can you all tell me what should I know or expect etc?