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r/ehlersdanlos

71,383 subscribers
This is a support sub for those with Ehlers-Danlos syndrome (all types) and HSD—diagnosed or waiting to be diagnosed. This is a welcoming place for those affected (or those simply wanting to learn more) to ask questions, share successes and failures, feel less alone, and discuss everyday life. Before participating, please read our rules. This subreddit does not allow medical advice. Thank you!

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Feedback Forms:
https://www.reddit.com/r/ehlersdanlos/s/fwQN2A4c2n

Notice: This subreddit is not actively monitored, so the posts here are only a small subset of what exists on reddit.

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Questions Discussion Vent Success! hEDS Trigger Warning: Body Image/Weight Discussion Rant/Vent Article/News/Research Seeking Support TW: Body Image/Weight Discussion hEDS Removed: Polls, surveys or research #9 JHS Resources TW: Eating Disorder/Disordered Eating Rant Does Anyone Else Connective Tissue Disorder Not Otherwise Specified Career/School TW: Death/Dying No Advice, Please No Advice, Please. HSD Product Recs
New Top (24hr) Top (Week) Top (Month)
to r/ehlersdanlos by manicpixietrainwreck
1 month ago
Is anyone still able to be in the gym regularly?
Discussion
to r/ehlersdanlos by manicpixietrainwreck
2 months ago
Preview thumbnail for Wasn’t expecting this today!!! image
Wasn’t expecting this today!!!
Article/News/Research
to r/ehlersdanlos by Key_Positive_9187
1 month ago
I thought I was having a Dysautonomia flare up and it Turned out to be Something Else
to r/ehlersdanlos by FlowersFor_Algernon
2 months ago
How tf do y’all get school work done with fatigue and brain fog
Discussion
to r/ehlersdanlos by Indycookies_1234
1 month ago
Can I live a fulfilling life with eds?
Discussion
to r/ehlersdanlos by raindrops_oceantops
1 month ago
Just got diagnosed with heds…
Discussion
to r/ehlersdanlos by manicpixietrainwreck
2 months ago
I experience so much insecurity over my stretch marks
TW: Body Image/Weight Discussion
to r/ehlersdanlos by willowtreeintherain
3 months ago
CCI - upright MRI - NHS - 🇬🇧
Questions
to r/ehlersdanlos by riri-su
3 weeks ago
Pain Relief
Discussion
to r/ehlersdanlos by willowtreeintherain
3 months ago
Motorcycle folks? 🇬🇧?
Discussion
to r/ehlersdanlos by MetallicCrocs
1 month ago
How long did it take you to get diagnosed?
Questions
to r/ehlersdanlos by Key_Positive_9187
1 month ago
I Want to Quit Physical Therapy
to r/ehlersdanlos by manicpixietrainwreck
2 months ago
Anybody else have a congenital heart defect?
Does Anyone Else
to r/ehlersdanlos by Key_Positive_9187
1 month ago
I just got rhabdomyolysis
to r/ehlersdanlos by manicpixietrainwreck
2 months ago
Thinnest ankle braces/support?
Questions
to r/ehlersdanlos by somethingweirder
3 weeks ago
slides that work with high arches
Product Recs
to r/ehlersdanlos by VeganMisandry
1 month ago
how are we today? please drop your complaints here
Seeking Support
to r/ehlersdanlos by suicidegoddesss
1 month ago
What's something ehlers took from you?
Questions
to r/ehlersdanlos by kitan25
1 month ago
EDS and perimenopause - what do you wish you would have known?
to r/ehlersdanlos by Illustrious_Read4386
1 month ago
Muscle Relaxers
Questions
to r/ehlersdanlos by Mommacandycane
1 month ago
How many people get diagnosed into adulthood? I think my son had a form of it and now that I look into it I am very sure I do too.
Discussion
to r/ehlersdanlos by ratratte
5 months ago
Preview thumbnail for Joint hypermobility may be caused by high bilirubin levels (Gilbert's syndrome) image
Joint hypermobility may be caused by high bilirubin levels (Gilbert's syndrome)
Article/News/Research
to r/ehlersdanlos by Key_Positive_9187
1 month ago
I Saw The Geneticist for the First Time Today
to r/ehlersdanlos by Key_Positive_9187
1 month ago
My Dysautonomia is Worse, Making My Raynaud's Worse
to r/ehlersdanlos by manicpixietrainwreck
2 months ago
Preview thumbnail for Anybody going to the Global Learning Conference in July? image
Anybody going to the Global Learning Conference in July?
Discussion