And I’m feeling so frustrated!! I have long suspected an eds diagnosis but have had to go through the gambit of specialist after specialist and invasive test after invasive test until I finally spent 3 minutes with a physiatrist who said ya I’ll give you your diagnosis right now???

Of course I’m relieved to finally have confirmation of what I’ve known for so long but I’m just feeling so much grief and anger over the hell I’ve been through to get here. And on top of that he said he has no suggestions as far as pain management and not to use any mobility aids? Am I crazy for thinking that’s crazy?

Any and all advice is welcomed. Happy to finally consider myself officially a part of this community 🩷