How long did it take you to get diagnosed?

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I am fairly confident I have hEDS. I sent a message to my doctor letting her know I suspect I have it and wondering if I should make an appointment for rheumatology or what the next steps would be. She said ehlers-danlo can take awhile to diagnose but she can put in a referral for me if I wanted.

For those with hyper mobile ehlers danlos, how long did it take you to diagnoses? I’m not in a hurry to get diagnosed, I’ll take as long as I need to do that. I’m just not sure that she believes me or that I’ve done my research, I thought it was an interesting comment.

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iamredditingatworkk

My primary doc diagnosed me on the first appointment. I found out about it online and told her why I think I have it. She pulled up the diagnostic criteria on her laptop, ran me through the tests and put it on my chart.

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Posted: 3 months ago
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