r/rarediseases

For people with rare diseases and those who want to know more about them. If you need help finding a patient group, share the disease and country and we can help you search. You are unlikely to find anyone with same disease here, but you will find kindred spirits who are also dealing with something that can feel very lonely. This is not the place for medical advice.

If you would like to find clinical trials related to your disease, start here: https://clinicaltrials.gov