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r/eds

11,825 subscribers
Ehlers Danlos Syndrome (EDS) is a underdiagnosed connective tissue disorder characterized by a genetic fault in collagen. It manifests as hypermobile joints and affects every organ system because we’re all made of connective tissue! We welcome all EDS subtypes, hypermobility spectrum disorder, Loeys Dietz, unnamed genetic disorders that present like EDS, self-diagnosed & suspected zebras. || || || Crowdsourced medical care saves lives. We welcome medical advice!

Notice: This subreddit is not actively monitored, so the posts here are only a small subset of what exists on reddit.

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to r/eds by raindrops_oceantops
1 month ago
Just got diagnosed with heds…
to r/eds by willowtreeintherain
3 months ago
Motorcyclists? 🇬🇧
Community Shenanigans
to r/eds by didabled
10 months ago
Difference between h/eds and eds?
Suspected and/or Questioning
to r/eds by MountainSprite
9 months ago
Mult-Generation
to r/eds by GreyWolf1738
3 weeks ago
I'm fairly certain but not 100%
Suspected and/or Questioning
to r/eds by Educational-Bat-100
9 months ago
Gastroparesis Questions?
to r/eds by koreancutie1
9 months ago
Any places in California that could want us / would use us as volunteers to learn more about EDS?
Medical Advice Welcome
in California
to r/eds by mollie_quinn
10 months ago
how to separate symptoms?
Medical Advice Welcome
to r/eds by BornEstablishment551
8 months ago
Never ending itchiness
Medical Advice Welcome
to r/eds by doxiemomfoster
1 year ago
PNS Stinging/Burning
to r/eds by divaminerva
9 months ago
Delayed puberty, hip, knee pain, skin flexibility, bruising. Depression, bladder issues - the list goes on. We live in a rural state- rheumatologist is the first referral. Is this the first steps we take?
to r/eds by alltheredribbons
1 year ago
MRI issues
to r/eds by Squishy20
1 year ago
Clickidy Clack Joints