Throught my life I've been very and I mean very hyper mobile. When I sit with my legs crossed I only feel comfort when I twist my top leg underneath the leg I am crossing over, my wrist pops all the time and sometimes while I'm laying down it pops and gets stuck (almost like it's out of place and I have to pop it back and it hurts extremely bad, I can lift my leg over my shoulder with ease, I can twist my elbow inward and outward, I can reach all parts of my back and interlace my fingers across my back as well. For other things I've noticed is I have thought back and have realized on how much I get compliments on my velvety soft skin. Not only that but it is stretchy in some places. I have regular calve joint pain that gets severe at times and constant back and shoulder blade pains, and I can never find a fully comfortable position while sitting or laying down. I did have myositis when I was about 6 or 7 and couldn't walk for a week after one night my leg joints hurt and woke up and couldn't walk or stand.

I also have a suspicion that I could have POTS alongside EDS as I know they are very often comorbid. Examples; when I stand up or get out of the bath, sometimes I get stars and very light headed, sometimes having to squint my eyes to return vision focus but have never fully blacked out, I get completely winded even just walking to the bathroom and back to bed, just standing (like in a checkout line) my heart rate will spike and I get lightheaded and the room gets brighter.

Thankfully I was able to book an appointment with my doctor to ask about this, but it's not until Nov 30th so I have a long while before I will know if he will take me seriously or not. (This is the same doctor who has brushed off all issues in the past and even told me I couldn't have PTSD as only war vets get that, and also overlooked my PCOS for 4 years) so I have a very educated guess he will blow me off yet again. To him I am a hypochondriac and he doesn't believe a word I say. Do I fear vascular EDS? Yes I do, but I have more confidence that it's only the hypermobile varient.