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r/Epilepsy

50,809 subscribers

Notice: This subreddit is not actively monitored, so the posts here are only a small subset of what exists on reddit.

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Question Medication [200mg Vimpat] Rant Cannabis Support Lamotrigine & Cannabis keppra 750mg 2x day Humor Depression Oxcarbazepine=600mgx2, Lacosemide=150mgx2 Advice Victory Employment Lamictal, Zonisamide Carbamazepine 900mg, VNS Trileptal, Zonegran, Klonopin, Briviact, RNS Newcomer THC, Xcopri, & Trokendi XR Relationships 1800 Dival ProEx Discussion Service Animal Topiramate 100mg (spouse) VNS + 4 medications lamotrigine titration Keppra 1500mg bd Lamictal 225mg 2x a day, Escitalopram 20mg Safety Epilepsy Art view more
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to r/Epilepsy by ShoreMama
5 months ago
Preview thumbnail for I hate that I need this. I thought this was only for old people lol..who else has one? image
I hate that I need this. I thought this was only for old people lol..who else has one?
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to r/Epilepsy by PercussionGuy33
1 year ago
Debating a second thermal ablation or a resection surgery
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to r/Epilepsy by ElegantMarionberry59
3 months ago
Im broken .
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to r/Epilepsy by RedVelvet25
3 months ago
Had a good cry in the EMU last night.
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to r/Epilepsy by forgottenlungs
5 months ago
Epilepsy is worse after surgery
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to r/Epilepsy by ElegantMarionberry59
3 months ago
I have refractory epilepsy , I have daily focals with impaired awareness. And a few crisis days in the month .
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to r/Epilepsy by ElegantMarionberry59
3 months ago
I have to make a final decision on left Amygdalotomy I canā€™t take it anymore.
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to r/Epilepsy by ElegantMarionberry59
3 months ago
This is not life , seizures every day , mood swing , mosquito šŸ¦Ÿ memory . Iā€™ll try one more thing if that doesnā€™t give some relief Iā€™ll seriously consider surgery before end of year . Iā€™m such a mess not fair for those around me. I have an RNS but not miracle in my case.
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to r/Epilepsy by PercussionGuy33
1 year ago
Klonopin vs Trlpeptal vs other treatments- I hate meds
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to r/Epilepsy by ElegantMarionberry59
3 months ago
I feel useless / Refractory Focal with impaired consciousness
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to r/Epilepsy by ElegantMarionberry59
3 months ago
I hate when Iā€™m asked What do you do all day ?
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to r/Epilepsy by ElegantMarionberry59
3 months ago
Chat ?
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to r/Epilepsy by ElegantMarionberry59
3 months ago
Waiting for the MD on guard to call me . I think Iā€™m heading status . Rescue doesnā€™t respond / Valtoco / Nazylam nothing . All I have is Ativan . I canā€™t not change anything as I have been accepted for a refractory focal impaired awareness study. Iā€™m days away. I just need to sleep šŸ˜“
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in Maryland
to r/Epilepsy by ElegantMarionberry59
3 months ago
Iā€™m out in the mall with seizures and I donā€™t give a flying f. I need to go out and see the world again. Enough of waiting for the impeding seizure .
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to r/Epilepsy by ElegantMarionberry59
3 months ago
Heading to the ER by MD orders , this crisis has been to long already .
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in Maryland
to r/Epilepsy by ElegantMarionberry59
3 months ago
Looking for volunteers opportunities that does not require a set schedule . Like mentoring , my trade is hospitality. I need to do something b4 I loose it šŸ§ 
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to r/Epilepsy by ElegantMarionberry59
3 months ago
If you are in the šŸ‡ŗšŸ‡ø check this out . Epilepsy Medical trials . https://clinicaltrials.gov/ct2/results?term=epilepsy&map_cntry=US
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to r/Epilepsy by ElegantMarionberry59
3 months ago
Preview thumbnail for My hero.. coming out of a focal with impaired conciseness. Milo learned how to assist and/or get help . image
My hero.. coming out of a focal with impaired conciseness. Milo learned how to assist and/or get help .
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to r/Epilepsy by ElegantMarionberry59
3 months ago
It is official Iā€™ll be participating in a study for Focal Seizures with Impaired consciousness šŸ’Ŗ
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to r/Epilepsy by PercussionGuy33
1 year ago
Online Support Groups via Video Calling
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to r/Epilepsy by ElegantMarionberry59
3 months ago
Stupid question , does anyone here is able to work intractable with focal with impaired consciousness? as in at least one everyday ? 10 days out of the month I get in crisis mode . I was thinking volunteer work from home with more than flexibility. I could mentor on all things hospitality . Free .
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to r/Epilepsy by ElegantMarionberry59
3 months ago
Hello , Iā€™m trying to find someone that had a left side Amygdalotomy. I have Focal with impaired consciousness every day , Iā€™m tired nothing works . Maybe the RNS is the reason of no more TĆ³nic Clonics. Thanks
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to r/Epilepsy by SpiritualRound7764
1 year ago
Late onset epilepsy/
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to r/Epilepsy by SpiritualRound7764
1 year ago
Later onset epilepsy?? Iā€™m 30 and diagnosed in2020 - pls hear my experience
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to r/Epilepsy by IcyEmployee5
11 months ago
can anyone give me advice on how to deal with epilepsy?
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