This article, in my opinion, makes some very helpful points. But there is one point I'd like to add.

The first item in the list says "I Googled your illness." Yes, it's nice to know people take the time to learn about your illness. At the same time, this can be a double-edged sword. There is a lot of misinformation out there, even on seemingly trustworthy sites. Just because it wasn't on Wikipedia doesn't mean it's true. And people will take every opportunity they can to use the information against you. One example might be this: "I read on BuzzFeed that you need to exercise if you have a chronic condition. See?!? I TOLD you that you were just being a lazy slob!" etc etc. The research should not be a means to shame and accuse. Instead of interpreting that research as the final say, loved ones should use that research to initiate a dialogue. Something like, "I researched your illness, and I was wondering . . . " and so on.

Just my two cents, though.