I've been researching about EDS for awhile now and have looked at the official diagnostic checklist and meet the criteria. I went to my GP today and he's useless. He only glanced at the checklist I'd brought and handed it back to me, and didn't ask to examine me at all ("oh I'm just a generalist. I can't diagnose things" 🙄). He said he had another patient once who thought she had this and he tried to refer her to a geneticist but the Dr said he wouldn't accept referrals for EDS. I told him I thought a rheumatologist was another option, so he's referring me to the closest one but didn't know if he knows anything about it either or will be willing to investigate it. I really wish I knew a specific doctor who I could ask to be seen by! The only one on the Ehlers-Danlos society website (Dr. Lucia Ma - a GP, not a specialist) isn't accepting patients. I tried via the Telus app like it says to do on the EDS website and they couldn't book me with her. I'm really hoping someone in this group knows of a knowledgeable Dr who I can ask to be referred to. I'm in the lower mainland, but would possibly travel to other areas too. Or just anyone in BC who was diagnosed, please tell me how that happened for you??