After chasing my diagnosis for 13 years, I finally have it! But holy hell has my entire being just crumbled in the last year or so... Work is too physically painful, so I'm desperately looking for a new career. I struggle to sleep in the same bed as my partners (poly) because it hurts too much and I dislocate at times. Id pay for physio or a trainer to help with my strength but I can't afford it after all the specialist appointments... No strength -> more pain -> limited work -> limited money -> can't afford help ....and the cycle continues.

I'm just so lost in all of this... what do I even do next?! I've spent so long trying to get the diagnosis... I hadn't thought of what to even do AFTER getting it o.O