It seems like every single medical mystery question I see here has several comments screaming “THATS JUST LIKE MY EDS” here’s the thing; EDS is real but it’s very ill defined. Many here seem to thing just having a high hyper mobility score equates to EDS. It doesn’t. Many many studies show 1/5 people score 6 on the beighton score. Nowhere close to that many have EDS. The vast majority with hypermobility will have no issues from it.

I also can’t help but feel those with EDS sometimes suffer from kitchen sink syndrome. As a doctor who sees it genuinely sometimes, this is where once a patient has a diagnosis of something, every hardship in their life is blamed on it. You’re getting headaches now? Must be EDS. Developed a good intolerance? Bet it’s EDS. Etc. it’s not. We see this a lot with those with autoimmune disease as well. As soon as someone feels they have one every small ailment is blamed on it. (I think my favorite was when someone said their weight gain was from psoriaais. No, obesity makes psoriaais worse but it doesn’t make you gain weight. It’s a skin condition. Does it raise risks for other issues? Yes, but by itself it’s an autoimmune disease affecting the skin)

Look EDS and other conditions are no joke. They can seriously impact someone’s day. However it seems like people love to interject their story into someone else’s. I’m just tired of every mystery diagnosis having 10 people jump in claiming it’s their condition.