I'm so glad I found this sub, maybe someone can help me. I've been dealing with hives for years. It would be every so often at first and now it's repeatedly on a daily basis.

They don't even appear like typical hives anymore, I just swell severely or my muscles feel like they're turning to stone and get very hard. It hurts to touch me and it often feels like my bones are splitting apart. When I first swell my fingernails and lips turn blue and I get ice cold. As the swelling progresses I get extremely hot and sweaty. My groin lymph nodes swell to the size of golf balls and I get so weak during these episodes that I can't get up. When I do stand it feels like my leg veins are going to burst open. My legs will go numb to the touch for days but still will hurt deep inside. Sometimes my chest hurts and it's difficult to breath. My GI tract is also inflamed and swollen.

Is this similar to anyone else's story? What's helped you? I'm desperate. I can't live a normal life anymore... I can't even leave my couch. I've had so many tests done. My legs have been biopsied and it's come back as hives. No other answers and all my doctors seem to have washed their hands of me.

I also have an autoimmune disorder and a genetic skin disorder, if that's any help.