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So… idk what is happening with my body and no doctors are helpful. They don’t give af and they make me feel like I’m bothering them or annoying. Tired of my doctor just randomly ghosting me. Long story short, xolair just randomly stop working for me 2 months ago and I’ve been in hell ever since. It was a miracle drug for 5 years. I’ve been super itchy, swollen, burning, feels like my body is literally attacking me everyday. The only thing that works is high dose steroids like metholprednisone and dexamethasone. Only 40-60 mg work. I’ve been on steroids for almost 3 months now and that’s so bad but they’re the only thing that keeps me sane. I tried tacromilus (an immune suppressant) for a week and no relief. Bad side effects like itchy , burning hands/feet and weird insomnia. I’m loosing hope. It’s ridiculous. I feel like an imposter in my own body. I refuse to live like this. I think imma write a letter to family to let them know it’s the only option to just kms. I’m suffering so bad and I can’t any longer.
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- 5 months ago
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