22
It probably doesn't need to be said but....
Post Body
There's somebody goin around sending information about 'curing Spina Bifida" in terms of certain bladder and bowel type surgeries that seem pretty experimental. There is no 'cure' for Spina Bifida, there are only fetal surgeries to lessen the symptoms of SB while in the womb. Every other surgery we have as folks with SB are just 'adjustments' so to speak if we need them. Alright carry on. Hope you're well.
Edit - Apparently admin have been made aware of this account sending this so called information to more than just myself and they ask if you receive it as well to block and report it as spam if you can.
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Profile updated: 1 month ago
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- Posted
- 6 months ago
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- reddit.com/r/spinabifida...