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I have been having undiagnosed pain issues for about 3 years. In August, my Neurologist was able to confirm a SFN diagnosis. It was nice to know the pain wasn’t in my head, but the limited treatment sucks.
My question is about a new symptom. I have severe pain issues in my left leg from hip to toes. As it has gotten colder outside, I find my left foot to be excruciatingly painful at night. It feels like it’s frozen and being crushed at the same time. I am in tears almost every night. I have to have a warm sock on that foot 24/7 and usually have to have a blanket covering my foot as well to make it tolerable at all.
Has anyone else had this kind of pain? If so, did you find anything that kept it from starting or lessened the pain?
Thanks in advance. Just sick of crying over pain.
Yes I know it helps a lot of people actually and I used to take it, I don’t have the sensations as often now so I stopped
Have you tried Dulexotine ? It’s the only thing that really did anything for me
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Honestly very valid then, it just helps with the pain and reduces anxiety for me, I really wish there were more treatment options for you. I know gabapentin is pretty much all you can do. Plus maybe IVIG but it’s super unlikely if you don’t know your cause and it’s so expensive :(