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My journey with SFN has been crazy so far. This all started off for me with abdominal pain, and some pelvic pain? I thought maybe I had a cyst. I went to the ER 7 times and was added twice. Slowly after the abdominal pain began it faded but then I started getting tingling in my fingertips. Soon the fingertips tingling went all the way to my hands and my feet as well. Now it covers my face, tongue, legs and arms and hands. So most of my body is affected. I’ve seen a hematologist and he says he doesn’t think it’s related to cancer or hepatitis… but as far as I’ve gotten since this started back in early June , is that I have Idiopathic SFN. I’m working to see a rheumatologist in December. I’m taking so many supplements and have been prescribed duloxetine except the side effects make it rough on me to take 60 mg. I don’t know if anyone has the same issue but I get vision problems when I take that much and it’s gone down a bit when I only take 30 mg. Just sharing my story but this has been nothing but scary since it started . I’ve tried steroids as well with little to nothing changing from it. I’m trying to remain optimistic but this is so scary for something to seemingly appear out of thin air!
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