Me too. I am sorry that anyone else has to experience the pain. It is a pain that is so intense nobody can understand unless they have it. Hyperbaric oxygen is one therapy thought to help but I've not had the opportunity to try it. It is also a lonely road for many, including myself...my exwife left me when I got sick...but I'm better off for it...still though...I would love to have a female around....Anyway though....therapy is also important is where I was trying to go with that.

Ivig is once a week. Either side of that for a day roughly, I feel not great...I have an autistic child that I spend most of my other time with. So little time to make friends. But still it is good to try.

I have known 1 person in the many years I've had this condition....to have a complete recovery.....that person was able to recover via stem cells. I also know 1 person who has had a decent recovery but not a complete recovery - she is probably 80% better....that is really good... I also know of many that actually do find enough relief to be productive in some way....unfortunately, despite my greatest efforts, I am one who has not yet found a way to recover (but in the last year - I was finally diagnosed with Sjogrens Disease - which is a systemic / progressive / disease....that causes SFN in some)....I've had this for 14 years and I can tell you that it is not pleasant. Try to be as positive as you can. Try to give your body, soul, mind, and spirit what it needs at all times (this means you have to listen to yourself). Get tested for unusual causes too like copper deficiency and get tested for sjogrens, get tested for all the other regular causes of sfn too....they are listed on the neuropathy commons website at mass general. Also get tested for cryoglobulinemic vasculitis etc..... feel free to msg me. Nobody deserves to live with this condition without answers and without finding a doctor that will help - I am still working on finding doctors that will help all these years later - the important thing is to keep trying.

Yeah but still not great...dazobalibep is one of them and some imabs....