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I am not diagnosed - my appointment has been set since early 2023 for July.
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I hope this is a good place to come for support, I honestly am not sure if I even belong here. Mods please remove if not allowed, this is just based on the (very little) information my PCP has offered up.

I have neck and back and shoulder pain often. Iā€™ve been like this since, high school I want to say? It was never a consistent pain and in the beginning it was never a big deal. I was young and it wasnā€™t messing with my every day life, and not knowing what it was and the continuous appointments to specialists wore me out. So I just dealt with it.

Now I am 33 years old, and struggling to make it to work 50% of the time. Iā€™ve had immeasurable amounts of stress since the start of the year, and it seems like thereā€™s always something wrong. Itā€™s frustrating, so of course Iā€™m back with a new PCP and an adult outlook on how to handle this. Iā€™ll go to the doctors, do the therapy, see the specialists, just get healthy for my daughter.

Last week was a doozy. I was stressed out due to family issues (currently splitting with daughters father after 13 years and heā€™s still living here trying to find a place) on top of medication issues because my pharmacy screwed up a script that I was out of and could withdrawal from.

This time it started as not being able to regulate my body temperature, feeling feverish (due to the aforementioned), and throwing up. Over the weekend the stomach issues settled but I could feel my neck and shoulders getting tight again. Couldnā€™t make it to work yesterday or today because of the pain, and had to call my doctors office to request another steroid script. This is how heā€™s instructed me to handle these ā€œflairsā€ until I can see the rheumatologist in July.

Iā€™m just feeling so, unreliable and irresponsible. On top of feeling insane for having all of these things that go wrong at random times. Iā€™d just like to be able to go to work a solid 40 hours and feel okay. Iā€™m trying so hard to keep a positive outlook.

Anyways, like I said, I donā€™t even know if I belong here. Maybe this is a vent? I think Iā€™m just looking for anyone else who maybe deals with this seemingly vicious cycle?

Hope youā€™re all having a wonderful day!

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1 year ago