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I created step-by-step, brain-fog proof instructions for SCIg. Would you change or add anything? Also, some updates. Also, sorry for posting so much.
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Alright so there's a lot to unpack here . . .

Looks like I might be getting SCIg (subcutaneous IVIg) after all.

My doctor prescribed GammaGard infusions, but they're $1,300 each without insurance. And this is weekly for life. The GammaGard OnePath program offers financial assistance, but you have to have health insurance in order to qualify. Same goes for all SCIg brands except one, which my doctor does not prescribe. My doctor enrolled me in OnePath anyway and hoped for the best. That was months ago.

I just got a phone call from a OnePath coordinator. She forwarded my information to the Rare Disease Charitable Foundation, who helps uninsured patients get IVIg and SCIg until they can get health insurance. They'll call me next week. That's when I'll know if I'm in. RDCF has no website or public information, so there's no way I would have ever have known about this.

This is a huge deal to me, because this is a huge step in the right direction. usually I just inch forward at best.

Learning to self-administer SCIg is a process, and I'm pretty scatterbrained because of the brain fog. I want to be a prepared as possible (also, I'm just THAT person.) So I decided to create an Amazon Wish List of SCIg supplies and also write out foolproof step-by-step instructions. Is there anything anyone would change or add to my instructions?

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IgG Sublass Immunodeficiency

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4 years ago