Yesterday, I got diagnosed with Immunoglobulin G Subclass Immunodeficiency. It took 2 years, three immunologists, and a lot of blood, sweat, and tears.

Here's the thing. My doctor wants me to start on weekly infusions. But I also have other health issues, so I can't work. But I'm still fighting for SSI. I've already gotten two denials and have had an unfavorable decision at the hearing level. So I am now working with my lawyer to appeal that. I had to have the hearing before I managed to get my PID diagnosis. I'm hoping this new diagnosis will help my case, but I know there are no guarantees. In the mean time, I have no health insurance and no income.

But I refuse to be deterred. I've been doing some digging, and financial assistance is sparse. The programs that do exist are usually meant for patients with health insurance. Here are the options I've explored so far:

1. I've discussed my financial circumstances with my doctor. She is sending me paperwork that may or may not help. Once I get those papers in the mail, and I sign and return them, they'll discuss it further and see what they can do.
2. A program called My Ig Source Directed me to this financial assistance authorization form. Once my doctor completes and submits it, they'll know more about whether or not they might be able to help me. It's for a brand called GammaGuard, but I'm still not sure which brand my doctor wants me to use. Note: GammaGuard itself does offer financial assistance, and their official website takes me to the same form.
3. NORD had nothing to offer.
4. Patient Services, Inc.'s ACCESS Program has no openings.
5. I spoke directly with the patient advocate from the Immune Deficiency Foundation, and she recommended I try NORD and PSI, neither of which panned out.

I know that, once I know what brand my doctor wants to use, that will help a little. But to be honest, that's only a fraction of the problem. If anyone has any ideas in the way of financial assistance for the uninsured, please let me know!

Thanks!