Okay background time. So I'm 26 and have had basically a constant tension headache with peaks and valleys since I was a Junior in High School. So about 13 or so years. I'm bad at math. These headaches were so intense at the start that I would literally be sitting in class and start bawling and fall to the floor. Every single day I would sit at a 5 and I would get a "peak" every couple of days that would be a 9. I wouldn't go to the ER as I could still walk and take care of basic needs. My doctor at the time put me on propanol. I started passing out in class a lot. Later on, in AP Psych of all places, that propanol was intended to be used for high blood pressure. My blood pressure at the time was low. Like stand up too quick and lights out for a few seconds. Finally I switch doctors and they immediately refer me to a Neurologist. I went on amatryptline for a while.

Before I went off to college, I had a full blown grand mal seizure. In the hospital, the Neurologist and I talked about a bunch of different medications and we ended up settling in on Kepra. Once I was in college, I noticed that the amatryptline had a potent side effect on me. Once I took it, it was sleepy time in about 90 minutes. Imagine the horrible situations I could get myself into with that one. Plus if I wasn't consistent with the timing of the medication, I would get another peak. So my Neurologist and I decided to switch. We ended up going with Nortryptline. I'm still taking this one.

Fast forward through dosage changes and a move to a new state. About 8 months ago I added Aimovig to my medication routine. My daily headache was down to a 1.5 and my "peaks" only happen about 1-2 times a month. I'm over the freaking moon as I finally feel free!

Then I hit the magical age of 26. In the US that means you can't be on your parents insurance anymore. Now I'm on insurance through my work and they don't cover any of the new injectable CCRP's. It's been about a month since going off of it and I'm seeing the migraines increase again. The pain level increases, the duration increases, and the frequency increases. I'm at a loss. It's so frustrating.

I'm on the list for a Neurology referral with the new medical team but I know what they are going to want to do. They want to try me on an anticonvulsant to treat both the seizures and the migraines. Sure. I've gone over this with countless doctors as I'm very lucky about who I stick with. I'd have to come off of both medications and have about a 2 week lapse before starting the new one. I drive to work. I haven't had a single seizure since the first one. I also work with kids with special needs at school who also have seizures. I can't just drop on them like that. It's too much of a risk.

Sorry for the long post. I feel like the back story is necessary. I just needed to vent a bit as my head starts to peak again.