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15 years of status migraine. 15 years of declining marriage.
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I've lost hope that my wife's pain will ever even be managed, forget about cured. Which I absolutely loathe. But all the treatment options that can be tried, have been tried at this point. Botox, accupuncture, accupressure, various auto injectors, nerve blocks, opioids (the only thing that has EVER allowed her to function), barbituates, preventatives, NSAIDs, and on and on and on. The Jefferson Headache Clinic neurologists really seem to have nothing more to offer her at this point. It's just maintaining the miserable status quo and hoping it doesn't get even worse. Reality is her broken sleep schedule, her pain never dropping below her 6 and rarely even below her 7, her being disabled and functionally incapacitated by pain and the fear of pain, 24/7.

I AM NOT LOOKING FOR MIGRAINE ADVICE.

I guess I'm looking for "marriage with migraine" advice.

I'm tired of going through life feeling like my wife is surrounded by a wall of pain that I can't get through. I'm tired of feeling like she's always too tired, in too much pain, too stressed, too disoriented by symptoms, too EVERYTHING for meaningful conversation, physical affection, or anything else that makes a marriage feel like home.

If you are in a LTR and have 24/7 migraine with ABSOLUTELY NO BREAKS FOR YEARS ON END, what is actually accessible and available for the maintenance of that relationship? What can I do, as the caregiver partner, to put the emphasis on "partner" instead of drowning in "caregiver"?

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4 months ago