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I'm not quite sure what the heck is going on with me.
Here Is a link to a recent video of the main thing. My neuro thinks it's Rythmatic Movement Disorder. I've had an MRI w/o contrast, which found a small infarct, pointing towards a stroke in the past, a small one and an eeg. I had a small, minor episode while they had the EEG going, and they said no signs of seizures.
now, these "episodes" can get light or worse. The one in the video, compared to the ones I've experienced, is about a 4/10
The one I had today, at about 06, 0700, was a 9. I felt it build up, collecting energy throughout my body and using my brain as a capacitor, then releasing it all at once. My arms, legs, and neck violently shook and went crazy. Usually, it's just my head that releases the energy, and I don't really feel it coming. Sometimes, I'll feel it coming on or about to, but most of the time, I won't.
Also, this is odd. Sometimes, I'll wake up suddenly in the middle of the night, and one of my hands—the fingers—will be all extended. They will be in the position as if you were to use every muscle in your hand all at once. It's not a comfortable position to be in. I'm not sure why I would put my hand like that. I'm not sure; it's just weird. It kind of makes me think that just before I woke up, my body may have been doing something.
Another weird thing to note is that, sometimes, not all the time, my entire body is somewhat numb. Not entirely, maybe like 5-10% or less. Just enough to be noticeable, and it feels like I'm experiencing myself from a different POV. It's sort of like the effect you would get when high from THC, but not nearly as potent. I don't consume THC or any drug in any way, nor do I consume alcohol. I am 100% sober from anything, I used to smoke very lightly 20 years ago that's about it. That's how I remember that feeling.
I don't know if this is related or a completely different issue, but I am also experiencing extreme fatigue-like symptoms. I saw a Hematologist who did some lab work; I have not had an appointment with him yet to go over it, but everything I looked up pointed toward high-iron-like syndromes.
Also, everyone I mention this to has told me they don't notice this, but I do. My speech is changing. Sometimes I talk normally, but in others, I can't get words out. I can't talk; it becomes difficult for me to form words, sentences, and even to form a thought properly; I'll look at a roll of paper towels, and all of a sudden, ill completely forget what it is ill have to call it a thing-a-ma-bob, sometimes I can't even do that I just have to stare at the person for a moment like my brain just shuts down completely and I can't get a word out at all.
This one is hard to explain, but I noticed I always have to keep moving something, an arm, leg, finger, joint, something to the point where it just becomes aggravating. Yes, I am ADHD. I've always had to do that, but not this bad; this is just. I don't know how to describe it, but it's bad all of a sudden.
There was another symptom I wanted to mention, and it's gone.
Oh, I remember. Is it normal that when you are lying down to sleep, at random, completely at random, and at all times, a random muscle, being a calf, arm, toe, foot, chest, whatever, literally any muscle in your body will just twitch, randomly fire off? I'll lie in bed, and there's always 1 or 2 muscles firing off randomly. No rhyme or pattern to it. Just twitching and firing synapses going off at random everywhere all the time. I don't really remember this being normal for me until recently.
I live alone, so there's no way to tell what's happening. I know these episodes have woken me up in the middle of the night plenty of times. The worst one night, I counted a little over two dozen separate times I was woken up from these. Im starting to become desperate for answers. Im not sure what to do.
There are days I struggle to do anything. I asked my doctor to see if I could get in-home care, and he said, "it's hard to get that with psychological conditions." .... I really felt insulted by that. I really feel like no one believes me. I show people these videos of me shaking, and I get mocked. Saying it's nothing, just rhythmic. like just stop doing it. Mom literally told me to stop thinking about it one day. I know I do have mental health problems. I am not denying that, but this is more than that. I have no family near me, and I live many states away from my closest relative. Unfortunately, I can't move out of state just yet due to my employment status.
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