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Is it ME/CFS or something else?
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I know I should ask a doctor but every time I have a flare up they just do blood tests which come back fine and never follow up with me. I feel quite alone and confused with what's going on.

In winter 2022 I started feeling more and more tired. I only felt refreshed after 10 hours of sleep. It was after a period when I worked full time, had quite intense period of union duties, and did my trade certification course so I thought it will get better after Christmas break. It didn't. I spent February 2023 on sick leave and for most of it I laid on my sofa, walking 10 steps to the kitchen made me dizzy. I had severe brain fog, to the point I was almost nonverbal because my brain couldn't produce words. My once excellent memory seemed to not retain anything anymore. I got put on Zoloft and it seemed to help, I went back to being my energetic self over time, but needed to put significant boundaries and build up a routine.

Lo and behold, winter came, and had another crash. Constantly tired. Slept 14 hours on weekends. Had 3h naps on weekdays and went to bed 2 hours after waking up. Went for a short run and couldn't move off the sofa for the next 2 days (in previous crash physical activity, when I managed to do it, did give me a slight energy spike, this time it just made things worse). Managed to claw back of it without going off sick, scaling back on a few duties at work and giving myself time and patience to rest. I'm still not fully there yet. Some things never returned since last year (especially memory and being able to focus, I seem to forget a lot and sometimes I just can't get my brain to focus on anything, I zone out of conversations halfway through uttering a sentence). But my symptoms are highly seasonal and my post-exertion malaise only showed up once - or maybe I'm too used to my baseline, for example I know I can't plan anything after spending a day in the office.

I'm also a diagnosed autistic, so maybe I just get into burnouts seasonally. The physical symptoms and how bad things got last 2 years do worry me though, they are completely new and I've always been a very physically and mentally active person and I'm at my 75% now at best. Usually at 50%. I'm quite desperate and looking for insight as to what to bring up to my GP because they seem to be confused too honestly.

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5 months ago