I've been in absolute hell for nearly six months now. It started with being a little itchy. Then came a rash a lil here and there. Starts as small bumps with a weird hard center. With time the bumps got bigger and some flattened and recognizable eczema set in all over my body and I mean EVERYWHERE. including my privates, under my nails, in my hair, my inner ears, etc. My hair started turning gray and falling out in clumps.

My skin not only was extremely dry and cracking, and developed a yellow crust, opening up into wounds, which hurt and radiated heat, but I started getting a different nerve-burning feeling all over. I'd wake up and the burning would be the most intense. Then I'd have these horrible episodes of nonstop sweating and feeling so hot yet I'd be shivering and cold? And the most intense itching of my life. I would feel like I couldn't breathe or it was harder to breathe. I went into the hospital twice for the same issue but it just got worse every time I left. I just would give anything for it to stop. It not only would go on for hours upon waking but started happening at night for just as long.

Doctors just treated me as though I was drug seeking the first two hospital stays even though I had documented history of a very rare autoimmune disorder and the lymphoma. And I never even asked for anything other than something to stop the burning and the itching.

Eventually I started to get panic attacks at the same time of these episodes. I felt like I was going crazy. My anxiety overall has worsened.

This last stay they promised they'd help me and my comfort was their top priority. They did one skin biopsy and said "it's just eczema" and scraped the top dry skin off some of the bumps on my hand to look for scabies, luckily none. Tested me for viruses and herpes - all negative. Also I did have a parasite found in dirt (I love exotic houseplants) but I was treated for it at my second stay. However they never made sure they were gone. But after all these tests they seemingly lost interest. I had to raise hell to just get benadryl and Atarax. I had three days of inescapable anxiety attacks until they started scheduled Ativan. But none of it even touched these episodes yet I received no other medicine or help.

Anyway complaining about the doctors isn't the point. The doctors did mention the cause could be related to my lymphoma. Said it was rare but it has been documented before. Another pet scan was done but they wouldn't tell me the results in the hospital just kept saying my onco would compare it to my old one and tell me outpatient which didn't feel right. Worried me cuz I was there over a week and the scan was done on day 3. So today I finally looked at the notes in myChart and they essentially wrote that more nodes are effected and most of my nodes are considerably larger than my last scan from August.

I'm stage 4 already so I know I was already mostly affected and I can't see the scan in my chart but I'm scared. I don't know if this is actually significant and it's all related or if it's a coincidence and it's just my autoimmune disorder reacting to the rock bottom stress I've been under in the last 6 months. Has and else experienced something similar? Am I just overly worried?

While they don't know the cause they have finally addressed the symptoms with tons of creams, treatments, and now dupixent. The episodes have decreased in intensity and now instead of feeling like I'm sitting in an oven, I feel as though cold water is being poured down my back nonstop. The creams have taken the redness down but my skin is still thick and bumpy.

Oh and they have checked my eosinophil levels this last stay and they are off the charts which did make me feel validated, that the itching isn't all in my head.