New filters on the Home Feed, take a look!
view details

This post has been de-listed

It is no longer included in search results and normal feeds (front page, hot posts, subreddit posts, etc). It remains visible only via the author's post history.

6
DNMT3A
Post Body

Hi I'm 53yrs old male with DNMT3A mutation,I finally got a Hospital to pay attention. University of Chicago medical excepted me and now had me enroll in NIH cancer institute research study for DNMT3A mutation. Seems hematologist can't figure out what's going on with me. Bone marrow scarring hip,pelvis, spine,ribs,sternum and head. I have 3 tumors in my head,t-4,sternum and ribs. You can see them,feel them yet they claim there not visible on imaging. No infection,tuberculosis on and on. I'm deteriorating rapidly. Dnmt3a mutation goes both myelodysplastic and myeloid proliferative with over lap. Yet no treatments and no help. It's chemotherapy and radiation resistant. People have had bone marrow transplant yet dnmt3a returned. My father has AML with every male having a forum of leukemia in our family. Anyone else have DNMT3A mutation with unresolved issues?

Author
User Disabled
Account Strength
0%
Disabled 6 months ago
Account Age
1 year
Verified Email
Yes
Verified Flair
Yes
Total Karma
3,636
Link Karma
158
Comment Karma
3,478
Profile updated: 2 days ago
Posts updated: 8 months ago

Subreddit

Post Details

We try to extract some basic information from the post title. This is not always successful or accurate, please use your best judgement and compare these values to the post title and body for confirmation.
Posted
9 months ago