Hi Update; I've been referred to Rheumatology 🤞🏻 I am seeking out information about anyone who has been diagnosed or is waiting for diagnosis with Ehlers Danlos syndrome in Halifax. What has been your experience after your doctor referred you? Where were you referred to? How long were wait times? Negative/positive experiences? I have experienced on going issues my whole life. I am 24. Doctors have never been able to figure out what exactly is wrong. I have done years of physio and massage therapy amoung other treatments for my symptoms with no relief. This last year my symptoms have become a lot more severe. Which I believe is due to EDS being progressive in some cases. All the dots started to connect. "If you can't connect the issues think connective tissues" - Ehlers Danlos Society. I had my youngest son 4 years ago. He was born with a heart condition that doctors couldn't figure out why or what exactly it was. The more research I have done around mine and my youngest's symptoms. I believe we may have Vascular EDS or a subtype. What are the treatments available in Halifax? As my symptoms are severe I am looking into getting medical care/treatments in the US.(I have dual citizenship) If I cannot find good care/wait times here. Thank you so much for reading!