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Weird triad of syndromes
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Of 37 calls ran in the last 3 days, 8 of them were youngsters (19-27) with hx of EDS/POTS/MCAS. All of them claimed limited ability to carry out ADLs, all were packed and ready to go when we rocked up. One of them videoed what I can only term a 3 minute soliloquy about their "journey" while we were heading out.

Is this a TikTok trend or something? I don't want to put these patients in a box but... This doesn't feel coincidental.

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11 months ago