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Thank you so much. I met with her virtually yesterday, and she was definitely knowledgeable about dysautonomic issues and even my comorbities! She is also thinking I may have MCAS after all, which I'm not diagnosed with, but I have all of the rest you normally get with Ehlers-Danlos. We're trying a calcium channel blocker, a new tilt table test, and seeing how that does for me.
I lost the post because it's been a few months, I was waiting for my pregnancy to be over and waited until my kiddo had a consistent nap schedule. But to the kind stranger something in VA, thank you thank you thank you!!!
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