I know this is landing on knowing ears but I just need somewhere to vent. I’ve got a complex medical history and have spent countless hours, days, weeks, months, hell years managing my disabilities. Whether it’s just managing pain, searching for a diagnosis, being poked/prodded/tested, getting treatment, recovering from treatment, spending thousands upon thousands of dollars on uninsured meds and medical devices, time lost from work, from friends, from family, from leisure. It’s all just so exhausting and frustrating.

I’m going for an iron transfusion tomorrow given over several hours. It’s my second one so there shouldn’t be any surprise side effects, but even so, going to it alone feels so sad and isolating. For those who get something like this only once in a while, it seems like it’s taken more seriously. But for the chronically ill, we’re just supposed to act like because we have to deal with it more regularly then it’s just fine and totally normal???

I don’t know what I’m looking for here. Just some words of comfort or reassurance. Thanks in advance y’all 🩷