Hello, I have had my desmoid tumor officially diagnosed for 5 years now. However I was suffering from the pain 4 years prior to my diagnosis. (Thank you Naval medicine) I have had no idea this subreddit existed and am beyond thankful to have found it. This has been such a lonely journey. I was diagnosed at 26 and have felt like I've been in some sort of hellish limbo ever since. (I'm now 32) My tumor is not related to FAP. It is located in my left femoral area. They won't even make an attempt at removal. The pain is excruciating daily. Is there anyone with this tumor in there leg as well? I'd love to talk to anyone with a tumor who can relate, and someone whom I could help support too. I am just longing for someone who actually understands.