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Rant about the unfairness of disability incoming… 😭
I am severe/profoundly deaf/hoh and I wear hearing aids both ears. Without them I can hear very little. I rely on them to function normally. My parents and paediatrician didn’t clue in that I was deaf until I was ten (HOW!? 😭) and offered very little support in the way of deaf culture or access to alternative supports like ASL.
My aids were covered by government programs when I was younger but for the last ten years I have been forced to pay out of pocket with some insurance benefits every time I needed a new one or repairs or updated molds etc. It has been a constant source of stress.
My current hearing aids broke, one a few months ago and the other last weekend. The manufacturer is refusing to repair them because they are too old. I need to buy new ones. There is funding I can apply for but the wait is long.
My job has told me I am not allowed to work while deaf (safety issues) and I am on forced unpaid leave until employment insurance kicks in (a month wait, and less than half what I make at work). I have paralyzingly anxiety every time I leave the house because I can’t hear anything.
I’m an absolute mess. I don’t know how I am going to afford new aids while missing so much work. I am kicking myself for not being prepared for this, for not learning enough ASL to communicate, for relying so much on assistive devices.
I am so tired of living in a world where my ability to function is reliant on very expensive and very fragile technology.
*I’m not looking for solutions. I know what I have to do. Wait for funding, look into financing solutions, and just wait. Maybe look for a more accommodating job in the meantime. I just wanted to rant to people who maybe understand my frustration.
I find it odd as well! I understand the concern but to the point of just “no you can’t work”!? They weren’t able to be give me a more specific reason than “safety issue for you and the children”. I’m looking into legal aid for advice on whether I can fight them on this.
I work with children who have high needs and disabilities. According to HR it is unsafe for both me and the children if I cannot hear.
No. There are always at least 2 other adult employees in the room.
Canada! But again, I’m not looking for answers. I just wanted to rant. Appreciate the support though.
It’s a school. So there’s tons of admin to do! Im really disappointed with the lack of effort on their part.
Apparently not. But I’m finding it very hard to believe that they even tried to come up with anything. Am looking into legal advice to see if I can fight them on it.
I have reached out to some legal aid services hoping to get some definite advice on exactly this. The lack of attempt at accommodation by them feels like discrimination.
I work with children who have high needs and disabilities. I understand the safety risk they are quoting. However I think they could have tried harder to accommodate instead of jumping straight to unpaid leave.
Yes there is. I have reached out already. Awaiting Await in a response.
It’s so jarring to go from being able to function with them to not at all. It’s wild that something so essential for deaf and hoh people is so inaccessible.
Bluetooth streaming is a lifesaver for phone calls! I used to have to take one aid out to answer the phone before Bluetooth (and then not be able to hear anything the caller was saying 😂).
I’ll check it out. Thanks! iPhone has a really good live captions option now also! I think it’s new in the last year or so. It transcribes phone calls and has the option to turn on the mic for other sounds. It is the only reason I have survived all these calls with HR and hearing centre meetings!
I’m in Canada. I have to stick with my current centre because the process of starting at a new one will take even longer. They are trying their best to secure funding and make them affordable.
I called other local centres and they are all booked out. Who knew hearing places were so busy? Some that I called were booking months in advance for a consultation. 😓
I have sent out applications for government funding and for private grants as well. Financing will be a last resort.
I do see where they are coming from, the kids I work with definitely need a high level of involvement and situational awareness. I am annoyed that they did not try harder to accommodate or give me a chance to come in and try.
It is a private school, non-unionized. Our insurance does not have short term disability only long term.
I'm sorry you had to deal with that. It is ridiculous how we are treated sometimes.
Thank you so much for this! This is what I needed to hear.
I appreciate well-meaning people in the comments trying to help, but TRUST ME I have been through every possible option available to me already. I have done all that I can do, but until legal things, employment things, funding things etc are addressed and resolved, I am still stuck here with no work and no pay in the meantime.
You’re lucky they will repair them. Widex told me that they won’t even touch them cause they’re five years and a few months old. 😭
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Yes my hearing centre does offer financing (with an interest rate of course 😅). I have options, all of them time consuming. I am just ranting about the unfairness of it all. 😓