When I first got sick my parents were well-intentioned but highly unhelpful. They didn’t really believe I was sick, pushed me to get out of bed, exercise, do stuff etc. They really believed I wasn’t trying hard enough to get better and that should push me to recover.

I’m not really sure what has happened but a switch has slowly flipped for both of them.

I think for my Dad it was hearing my Harvard trained doctor tell me I met every criteria for an ME/CFS diagnosis. My Dad will listen to anyone with enough letters after their name who went to/teaches at a prestigious school.

For my Mom I think it was watching her close friend get sick with long COVID and have to retire early. Her friend was incredibly open with my Mom about her struggles and the symptoms she experiences.

Today they are sharing images on Facebook to bring awareness to ME/CFS.

I guess I just wanted to give you all some hope. If your family isn’t supportive now, they might be down the line. You never know what might help change their minds.