I was diagnosed with cfs in 2012. I believe I began showing symptoms in 2005.

In 2005, I also believe I got mono (I have since tested positive for EBV present in the body, and that is when I remember having mono-like symptoms, but it was never diagnosed at that time). At the time I had mono, I was also living in a place that I suspected of having mold present. This was never proved. Since then, there have been two other instances of living spaces that could include mold, one of which is where I currently stay part time. (Couch hopping until disability comes through so probably forever… ha)

I just took a urine test for mycotoxins and came out insanely high for black mold. Like I’m not even in the bracket of what’s considered high, it’s so high.

We have no way of knowing when or how I was exposed.

But… Is this contributing to my disease … or causing me to have cfs symptoms and be misdiagnosed this whole time…?

Has anyone else been exposed to black mold, detoxed from it, and still had cfs afterward? What is the detox experience even like? I know it can exacerbate symptoms, and I’m not sure I could tolerate that.

This feels a bit disconnected and rambly, so I apologize. I’m struggling to put my thoughts together about this and don’t even know where to start. But for once in a long time, I have a tiny glimmer of hope that maybe, just maybe, things could improve marginally.