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Could I have had CFS for 17 years without knowing?
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Hello everyone,

I had glandular fever (mono) when I was 15 and definitely never fully recovered back to my original health.

Since then I've ways been kind of sickly, always catching colds and stuff. And have been back and forth to the doctors for blood tests because I've always complained to them about general tiredness and fatigue. Nothings ever come up abnormal so they have always left it at that. I was always able to work full time, so I never pushed any further.

Then I had kids so didn't work anymore and found myself napping when they did, and when they grew out of naps I'd often fall asleep on the sofa when they were playing or watching TV.

This year I've moved house, into a multi generational home with my mum, my grandparents, my husband and kids, and my nephew who has a history of childhood trauma and needs a lot of extra support. The hope was that we could all help eachother out, but I seem to be getting worse and now can't function without a 2 hour nap in the middle of the day and then a ton of extra sleep/laying in bed at the weekends when my husband isn't working. This is putting a lot of stress on my mum who really needed my support, but is now supporting me instead.

I've been to the docs again and been told my iron is low, but just above the aneamic threshold, and I'm prediabetic so my blood sugar is too high, but not high enough to be considered type 2 yet. I've been told to get my iron up and my blood sugar down.

The nurse I spoke to efore my last doctor just gave me a long to the nhs page on CFS, which is what made me think back to all those years ago when I first got ill.

So do you think I could have had it for all these years and it's been mild enough to go unnoticed by the doctors? I've been trying to pack myself just incase, but I know there's a lot of other stuff to rule out before a CFS diagnosis. And this time I'm going to keep hounding my gp for answers

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3 years ago