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Marked NSFW bc it might be an upsetting subject.
Text to parents/bf/bro… but I’d really like to hear what you all think here.
Text I sent:
“Sorry to dump this dramatic question on you all. Please take this seriously though.
This time last year was the last time I was able to leave the house. Doing so made me so sick I have still not recovered.
This disease can progress to me being in a dark room on a feeding tube for the rest of my life. It’s very serious and very scary.
I have to get an ultrasound and mammogram asap. I’ve been putting it off bc I’m too sick to do it. But I know you aren’t supposed to put these sorts of things off.
We have been trying to get me first to [friend]’s and then I can stay there and schedule an appointment.
However I just realized that I do not have any plans in place for if I get horribly sick again. I do not have an advanced directive, will, or power of attorney with someone, etc. and if I become as sick again or worse, I will not be able to do those things at all.
So my question is, should I be fast-tracking those things before trying to leave, or just roll the dice and go to [friend]’s to attempt the appointment?
I could get there and not be able to leave either. Again, like I got here to [boyfriend]’s last year and haven’t been able to leave.
I’m already in a state of post exertional malaise which is very bad and means I overdid it again.
Please I know it’s a scary idea but I need to be taken seriously that this could be super damaging and maybe I won’t recover.”
What would y’all do??? Please advise. I’ve been in a dark room for days now with this crash-on-a-crash.
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- 11 months ago
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