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Wising you all the best. Feeling lonely but loved and loving
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Hey lovely people out there.

I just want to share i guess.

My docs recommended me to start a palliative treatment after many surgeries and radiation treatments because i’m not going to get rid of the cancer; it’s in my spinal canal/spinal fluid and getting more agressive, according to biopsies (sorry English is not my first language).

I have no idea what is to come next.. i can live a good relatively healthy life for the coming years but it can go sideway any moment, there is no clear prognosis. Only that I cannot heal.

I have no idea what I should do. Act if nothing is here, make a bucket list, whatever. I can’t even do the things i love because my energy is low because of low trombocytes and leukocytes and almost no one seems to understand. There are 2-3 persons who understand me a bit but i lost many friends.

I’m keeping positive thoughts tho, and happy to have what i have now. But it kinda feels like i’m isolated.

Anyone feels similar? I don’t doubt. Wish we could support each other.

Wishing you all the best <3

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1 year ago