Hey everyone. It started when i was a teenager with a relatively benign (grade 1) tumour in my spinal canal. Came back after 13 years. Now, every 2 years it comes back and every time more agressively.

I don’t know what to do anymore. It’s a grade 3 glioma (ependymoma) which can spread throughout my whole central nervous system.

A month ago the worst case scenario for me was to end up in a wheelchair. Since a week, worst case scenario is death. I’m 33 and not ready to die yet. They want to start chemo, probably, but it does not work well because the cancer has grown deep into my nerves and this type of glioma is very rare.

I feel lonely, no one around me understands what I’m going through and i’m afraid to leave my love ones behind and break their hearts. I don’t understand why this is happening. Any kind word would be so much appreciated