31F diagnosed with - stage 1 (but likely closer to stage 2 post mastectomy pathology…apparently the tumors were difficult to measure) lobular BC. My MammaPrint recurrence risk was “Ultra Low”. Had a double mastectomy in April and just finished 4 rounds of TC chemo.

Now I’m onto the hormone therapy piece. Originally I was told 5-7 years of Tamoxifen. Post mastectomy pathology I was told they might add Lupron in the treatment for 2 years along with the Tamoxifen. I didn’t care much at the time…but I’ve been on Lupron now since May and I hate it. I’m in medically induced menopause. I have gained 15-20 lbs and have no libido left to speak of. The hot flashes have eased off but were gnarly at first.

My care team just messaged me casually saying I will be continuing Lupron for 2 years and I’m SO discouraged. It was a “maybe” last I spoke to my oncologist, and now some nurse is messaging me saying it’s a definite. I’m okay with the Tamoxifen (though I haven’t started it yet), I just was expecting a conversation with my doctor before being told they’d like to keep me in menopause for 2 additional years.

I’m getting a second opinion soon, so this is really just a rant, but if anyone wants to chime in with their hormone therapy experience I’d love to hear it! Particularly with Lupron. Does the weight gain level off? Will I ever feel sexy again? I’m a friggen newlywed and my boobs are gone, I have male pattern baldness post chemo, and my estrogen is non existent. Thank god my husband is amazing but I’m getting sick of feeling this level of unattractive.

(Started taking the Lupron to protect my ovaries during chemo)

TLDR: I’m getting burnt out on treatments & wanna feel good in my body again.