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I’ve read through a few posts on here about TC and it does seem like a very mixed bag. I (31F) had my first round yesterday and it was too anticlimactic…to the point where I’m freaking myself out about what’s to come. I am cold capping with Paxman but results from that seem incredibly variable too. I have a Neulasta patch that will dispense at 6:30 tonight and will take Claritin for the next few days to stay on top of bone pain.
Biggest worries for me are: hair loss (I know at least some shedding will be in my future 2-3 weeks from now even with the cold cap), and not being able to do the fieldwork part of my job (which is to operate small boats..I’m on the schedule for a 4 hour boat run next Wed which will be exactly a week post first infusion).
Any tips/tricks/good or bad experiences with 4 rounds of TC I’d love to hear! Even if I’ve heard it before, or it’s not all positive news. I just really want to know what’s coming. For me, the unknowns are the worst part. A long list of potential side effects is one thing but actually hearing from women who’ve gone through it is far more comforting.
Thank you so much for the kind words 🥹 and advice! I think once I’m in it and dealing with some of the symptoms I’ve been warned about, I’ll be about to deal with it better than the anticipation.
Damn you sound like a badass…working full time plus grad school AND dealing with cancer. I’m working full time but have amazing benefits (had 11 weeks of sick built up) so I’m using 2-3 sick days post infusion and will adjust from there as I start to see how it really affects me. How much hair were you able to retain with cold capping?
Yeah I keep hearing I’ll start to feel it a few days out. Good to keep in mind
Wonderful tips! Hasn’t heard some of these before…thank you!
Definitely, all of these potential symptoms sound way better than having a higher chance of getting cancer again (I’m doing adjuvant TC). Good to hear your hair started growing back fast & you tolerated TC well overall!
I think that’s the hardest part for me…the waiting game. I’ve never been a patient person and I thought getting diagnosed with cancer would help me in that aspect but unfortunately…it has not 😅 acupuncture and exercise keep popping up as suggestions so I’ll be incorporating that throughout! Thanks
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Hahaha that’s a wonderful quote & reminder to let go of things we can’t control (even though I loathe that piece of this) 😅