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Hi! I am stage one, triple positive. Currently going through TCPH. The lymph nodes appear clear for now but we wonāt know until surgery. I am struggling with which surgery to choose.
My doctor is recommending a lumpectomy. I would prefer to have a less invasive surgery but is there any benefit to having a mastectomy over a lumpectomy? I have no genetic genes.
If you get a mastectomy and donāt have to do mammograms anymore, how do you know if anything is growing in the breast tissue that is left behind?
I want to make the best educated decision that will keep my cancer from coming back!
I hated this decision. Ultimately a mastectomy ended up being recommended because I have lobular cancer which is difficult to see on scans, and they also ended up finding DCIS.
I was leaning toward a mastectomy anyway because I was nervous about radiation. The doctor told me there was about a 1/500 chance of developing another type of cancer (sarcoma I think) with the radiation and it could affect the size/shape of my breast as well as change skin texture. I also read about women experiencing bone pain near the radiation site (ribs) and depending on which side you need it, it could affect your heart.
I figured if I got cancer at 30 with no family history I didnāt want to take even a 1/500 chance of developing another cancer. However, as you know a mastectomy isnāt devoid of cons either. My breasts are totally numb, I wonāt ever be able to breastfeed, and even though I joke about getting bigger boobs itās not even close to being similar to a breast augmentation. The temporary implants (expanders) are strange and lumpy looking under my skin. I was also told quality of life is better with the ābreast conservationā (lumpectomy and radiation) method but Iām pretty fresh out of DMX and have been feeling great honestly.
Ultimately it ended up being the right decision for me because they found 2 additional tumors that didnāt show up on scans (lobular š) and Iām not sure if radiation would have totally taken care of them due to their size.
I was told the method of monitoring post DMX would be physical breast exams which is a little scary. But since scans were useless to me anyway, I donāt mind too much.
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