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So, it turns out my mom doesn't have the BRCA2 gene like I have. It only took her more than a year to get tested, and I needed her to do it so that I can get a hysterectomy (I'm hoping for full, but at least partial). And she kept putting it off month after month after month, and now less than a month before my pre-op appointment she does it and of course she's negative! I don't know my family history on my father's side because he passed away 6 months before my diagnosis and we had been estranged from that side for years... I had to fight so hard to convince my gyno oncologist for this surgery (my medical oncologist approves it) and now I feel like she's going to change her mind and say no we're not doing this. Because I am soooo young (I'm 34). My husband is trans, we're not having anymore children (I have one from a previous marriage). I understand I will get arthritis and could get dementia. Those are the things I expected to deal with in life... Not fucking cancer. And removing the organs that create food for my cancer I think it more important than reducing my risk for fucking arthritis. Not to mention how it could help my endometriosis that I've been dealing with for years and years...
And my cousin (mother's side) - she's had ovarian, cervical, and endometrial cancer. And she's BRCA2 positive as well. But, I guess that won't matter to the surgeon now as my mom wasn't the one who passed the gene along...
I've had so little control over this whole process, and now I feel like this is just one more wrench thrown in.
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- 2 years ago
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