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My sister (now 33) was diagnosed with an anaplastic astrocytoma almost 6 years ago. This year we found out that it wasn't responding to chemo anymore, she couldn't have any surgeries and there was very little that could be done.
In june the doctors took her off of the steroid meds for the swelling and she almost died a few days later. She went back on them, on avastin and CBD oil and it seemed to help. She was able to walk again, work again, she was able to move the left side of her body.
Come last week, she's in a wheelchair once more. On friday we see her and she's talkative, sleeping some but not more than usual, and eating food.
We saw her yesterday, my parents said she spends most of the time sleeping, she barely ate anything and barely said a word.
I know her time is short, I just don't know how short. I'm a wreck right now even though it's been so long coming. I want to be there for her, but at the same time I don't want to see her like this. I feel awful for wanting to remember her when she was healthy and not wanting to see her at all, but at the same time I know I need to be there.
I just don't know what to do.
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- 7 years ago
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