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I have never heard of this illness before my 8 month daughter was diagnosed with it.
It started on February 28th, officially diagnosed on March 2nd and we have been in the hospital since March 4th due to low oxygen levels.
She's doing much better, but still only 50% of being herself. We finally got some smiles today which helped my heart.
Has anyone else gone through this or going through this? I feel so alone, I've never known anyone that has gone through this.
Image of my poor baby girl: http://imgur.com/UOuzo1X
Edit: word
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- 9 years ago
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