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The public health approach of autism is terrible where I live
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Sorry for the very long post, but the details are important to understand the whole image.

After discussing with formally diagnosed friends and investigating by myself, I am considering the fact that I could have autism.

Being in a cheap and efficient (normally) health system country, I realised that a regional center for autism was near my location. It is designed to communicate amongst the general public and diagnose autism according to the last medical consensus, helped by experts. Exactly what I needed. This is what I understood before coming there. However, when I visited this center, I realised that almost all the resources were dedicated to child autism, for kids and their families, with serious symptoms. The receptionist confirmed me that everyone is welcomed for help about autism.

They gave me the information brochure for adults. The first few pages were about how autism without intellectual deficiency is very unusual in the general population (without any source to back it), and that personality disorders, social phobia, depression... were a lot more common. Talking only about this while I know that it is only one "type" of autism and the absence of source made me a bit surprised. They mention that they only deal with the most difficult cases to diagnose and that people should only come here backed by a psychiatrist.

Fine. The brochure mentioned that there is no official medical procedure or test to diagnose autism, once a psychiatrist diagnose you it's done. But are they all competent to do so? While looking for a psychiatrist, I either found old doctors (which are surely not in practice up to date on this kind of fastly evolving definition) or psychiatrist that also perform psychoanalysis (sadly it's still too common in my country even though psychiatrist are scientists). None of them is mentionning autism in their capabilities. The center don't provide any list of psychiatrists. So what, either I have a diagnosis with ten years late so maybe wrong or a diagnosis about how my fall when I was 6 impacted my whole life?

The center just made me hesitate more about autism, and I don't find any good resource or expert which are all dedicated to diagnosing either child or "complicated cases". I just want to have a clear and science-based answer of whether I have autism or not (and so what). I start to think that their low number of adults concerned, as I saw with some of my friends, is because a lot of people hesitate with the necessity of diagnosing reading such brochure and so are not diagnosed or misdiagnosed. I even found contradictory numbers about high functioning autism among adults in a public national website.

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1 year ago