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This disease takes such a mental toll.
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Iā€™ve had a heck of a start to the new year. I switched biologics in December due to some potential side effects (still not even sure the medication was the issue), and I went from doing absolutely amazing to absolutely terrible.

The switch caused a flare, so cue over a month of prednisone and all the side effects from that. Then the flare caused my facet joints to act up again, and while I was previously stable from a prior RFA and the other biologic, the new med did not seem to quell the pain. So now Iā€™ve started the process of medial branch injections and a planned RFA. Somewhere along the way, I managed to herniate four discs in both my neck and low back (probably weightlifting combined with the flare or maybe just bad luck, I donā€™t even know), so now Iā€™ve been having to do PT again.

But I have so many good things going on in my life as well, a positive career change that will allow me to educate and help others with autoimmune disease, a wonderful family with the most supportive husband I could ever ask for, an active social life. And yetā€¦Iā€™m finding that Iā€™m totally blank. The things that should make me happy donā€™t and the things that should make me sad (like these health issues) I just feel like saying ā€œwhatever, what else is newā€.

I donā€™t know if Iā€™m just totally disassociating from feelings because of so many highs and lows recently or if Iā€™ve just resigned myself to some sort of depression. I finally accepted that I may need some help with processing my feelings (like for instance the massive guilt I feel for having this disease and how at times it takes away from me being a good wife/mother) that I keep pushing down and ignoring. So I made an appointment for next week with a therapist I used to see years ago who I really trust as she was great for the issue I saw her for. Logically I know Iā€™m doing the right thing, but the other part of me just feels like ā€œgreat, another doctor/apptā€.

Has anyone here felt that therapy really helped them with the mental side of having a chronic illness? Iā€™m also open to book or podcast suggestions in the interim or as an adjunct to formal therapy.

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10 months ago