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Never ending disappointment
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TMJ severely effects my day to day. I've posted a couple times here but I feel the need to do it again because its just continual frustration.

Every day brings a different degree of pain. The sinus problems have been terrible, along with the eye pain, jaw pain & trigeminal neuralgia. All of which not officially diagnosed because nobody cares. I think I'm gonna go mad. One useless referral after another. Months spent waiting to speak over results: CT scans and MRI that the GP says are all "fine" yet I never have a chance to speak to or find a specialist that actually listens to me.

I don't want to do this anymore. I'm tired of struggling to advocate for myself. I'm struggling to function, I'm finding it difficult to go to work due to my vision loss and migraines. Nobody seems to care. Not neurologists, not opthomologists, not the ER, not the family doctor. I'm tired of living in pain. No I am not drug seeking. I want solutions. Life is not full of pleasure. From the moment I wake up until the moment I go to sleep, I am experiencing some type of destructive symptom that is becoming more and more unmanageable.

Do these people know what tmj is? Why are doctors suggesting "magnesium" like go fuck yourself. The CAUSE of these migraines is a far more insidious ailment. Pfffttt suggesting magnesium as if we don't know why these migraines are happening. Fuck off.

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</3 sigh.

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Thanks so much for your support. I think I have a bit of my vocal history to blame. Many years in organized choral groups, over extending my jaw as a teen I think could have led to a lot of the contributing tension. And as someone with already established bruxism, it may have been a recipe for pain and suffering which is what I face now. There is so much we don't know about our bodies & you're right... absolute shame that there aren't any jaw specialists.

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1 year ago