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Hey everyone, it's my first time posting here, so I should probably give an introduction. I am an (almost) 22 year old Canadian male, and I had a ruptured AVM in my brain when I was 15. I am incredibly fortunate in that my symptoms are relatively mild in that I now have a visual condition. Or at least, that was the case for the last 6 years. I am now finishing college, and roughly 4 months ago, I had had my first seizure (grand mal) since the one fateful night. Since then, I have had 2 more, each 2 weeks apart.
My neurologist assures me that seizures obviously aren't GOOD, but pose little threat to my health unless the seizure lasts longer than 2 minutes. Even still, each one has been terrifying, and quite honestly mentally debilitating, as I'm sure many of you know.
My question to you all is quite simple. How do you live knowing that at any point you could suddenly have a seizure? If you do have seizures, how does that affect your ability to live independently? (If at all)
Apologies in advance for formatting, I'm posting from mobile.
TLDR: 6 years after my TBI, I've started having seizures, which is traumatizing. Do you have any advice for how to deal with seizures (emotionally/mentally speaking)?
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- 3 years ago
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